Paul’s father, Paul Grandinette, said his son is battling a rare illness. Doctors have diagnosed him with autosomal recessive polycystic kidney disease, but tests have shown that’s not exactly what he has. His son has gone through a lot for such a young boy, he said, and he hopes the vacation will help him battle what might be next.
“We are hoping this trip will make Paul’s future more bearable and it’s going to be kind of a stress relief because we’ve just had bad news after bad news after bad news, bad test result after bad test result,” Paul Grandinette said.
Paul Jr. said he is most excited about the haunted house at Disney World. The 4-year-old said he wasn’t afraid of fake ghosts.
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Paul Grandinette said his son picked out the trip himself.
Paul Jr. is healthy right now, Paul Grandinette said, but soon doctors expect his kidneys and liver will give out and need to be replaced. The child is also at risk of getting brain tumors.
The dad said his son has been anticipating this trip for a long time.
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“He’s been talking about the trip for weeks and weeks,” he said. “And as it has been getting closer and as a 4-year-old he’s been getting more and more excited.”
Paul Jr. said he is just as excited for Legoland as he is for Disney World. He said he hopes to collect more Star Wars Legos while on the trip.